Learning to appreciate the good moments when they are right in front of you. I’ve been having a rough month and I’ve been trying to look back and smile. This photo reminds me of a time where I pushed through and was feeling awful. I had just started a vacation, having arrived the night before. I had been feeling feverish all day and was completely exhausted. We were going to a show and I was freezing even though it was 90+ out, I had no sweater with me so I literally used the blanket I bought on the plane as a shawl. My boyfriend and I joke about this all the time now because it actually looked half decent. I’m trying to force myself to look at the positive moments during these rough times. There are bright spots and fun moments that can help drive us in the future. Make sure that you recognize them and appreciate them, because you don’t know when you’ll get the next chance to feel that way again. My shortness of breath is still a major issue and I can’t seem to get it under control. I’m going to have to figure out how to manage this chronic bronchitis and it makes me anxious going into cold and flu season. My POTS, which has really been an issue for me in the past, something I barely related to, is now becoming problematic and more noticeable. I’m rolling with the punches but I’m feeling super fatigued. I will say I’m really excited that it’s becoming cooler and we’re reaching the holidays, my favorite time of the year. #eds #chronicallyill #mcas #chronicillnessblogger #mastcellactivationsyndrome #chronicillnesswarrior #blogger #ehlersdanlos #ehlersdanlossyndrome #chronicpain #chronicmigraine #chronicillness #invisibleillness #medicalzebra #dysautonomia #chronicpainawareness #invisibleillnessawareness #invisibleillnesswarrior #mastcell #mastcelldisease #spoonie #spoonielife #lungdisease #bronchitis #chronicbronchitis #potsie #butyoudontlooksick #posturalorthostatictachycardiasyndrome #pots #mastcellactivationdisorder
#eds #chronicallyill #mcas #chronicillnessblogger #mastcellactivationsyndrome #chronicillnesswarrior #blogger #ehlersdanlos #ehlersdanlossyndrome #chronicpain #chronicmigraine #chronicillness #invisibleillness #medicalzebra #dysautonomia #chronicpainawareness #invisibleillnessawareness #invisibleillnesswarrior #mastcell #mastcelldisease #spoonie #spoonielife #lungdisease #bronchitis #chronicbronchitis #potsie #butyoudontlooksick #posturalorthostatictachycardiasyndrome #pots #mastcellactivationdisorder
|
